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Chasing the Intact Mind

How the Severely Autistic and Intellectually Disabled Were Excluded from the Debates That Affect Them Most

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Wait time: About 4 weeks
0 of 1 copy available
Wait time: About 4 weeks
A comprehensive introduction to the concept of the "intact mind" and how it affects disability policy and practice. The concept of the intact mind, first described in a 2006 memoir, refers to the idea that inside every autistic child is an intelligent, typical child waiting to be liberated by the right diet, the right treatment intervention, the right combination of supports and accommodations. The sentiment itself is not new. Emerging largely out of psychoanalytic theory dating back to the end of the 19th century, the intact mind was later amplified in memoirs, where parents wrote of their tireless efforts to free their children from the grip of autism. Though the idea gives hope to parents devastated by a child's diagnosis, Amy Lutz argues that it has also contributed to widespread dismantling of services badly needed by severely disabled children and their families. In Chasing the Intact Mind, Lutz traces the history of the intact mind concept, explaining how it influences current policy and practice affecting those with autism. Lutz provides a historical analysis of the intact mind narrative and describes how the concept—originally unique to autism—has come to inform current debates at the heart of intellectual and developmental disability practice and policy in the United States, including battles over sheltered workshops, legal guardianship, and facilitated communication. Lutz argues that focusing on the intact mind and marginalizing those with severe disability reproduces historic patterns of discrimination that yoked human worth to intelligence, and that it is only by making space for the impaired mind that we will be able to resolve these ongoing clashes—as well as even larger questions of personhood, dependency, and care.
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    • Library Journal

      October 1, 2023

      Lutz (history of medicine, Univ. of Pennsylvania; We Walk: Life with Severe Autism) is the VP of the National Council on Severe Autism. In this book, she addresses head-on how society often treats people who are intellectually disabled. She explains the concept of "the intact mind," the erroneous view that inside every autistic person there is an intelligent, typical person waiting to be let out (via diets or other treatments). Stressing the need for improved services, Lutz asserts that this egregious perspective has led to discrimination and the dismantling of programs that autistic people need and want, with considerable evidence to support her argument. She aims to help readers better understand autism, and she does so by summarizing decades of physician and parental memoirs that show the evolution of how autism has been viewed. She also studies their impacts; for example, the book explores the U.S. policy that allows employers with a particular certification to pay people with disabilities less than the federal minimum wage. VERDICT A valuable and insightful book for readers who want to trace the origins of the intact mind concept and its influence on practices and policies that discriminate against intellectually and developmentally disabled people.--Mason Bennett

      Copyright 2023 Library Journal, LLC Used with permission.

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  • English

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